Clophill St Marys CofE lower school

Health Support for Parents

Children's Community Health Hub

The Health HUB is a single contact number and email address for the 0-19 School Nursing and Health Visiting Teams across Bedfordshire and Luton.  The contact number can also be used to speak to the Community Paediatricians Teams and Looked After Children Teams.  Parents can access this resource if they need support from any of the above teams, Monday-Friday from 09:00-17:00:

Parentline

Parentline is also available as a confidential text messaging service for parents of 0-19 year olds in Bedfordshire, led by the Health Visiting & School Nursing Service, offering advice and support to parents and carers on a range of issues, including emotional health:

TEXT: 07507 331456

Diagnosis Resource Pack

 

Families often find the experience of their child receiving a neurodiversity diagnosis (e.g. Autism or ADHD) very challenging and, following the lengthy diagnosis process, are left with little information, or understanding of ‘what next?  Families told Bedfordshire and Luton Children's Community Health Services that a 'one-stop shop' for information, resources and signposting following a diagnosis would be really useful, and that they would like this information to be accessible and from a trusted source. 

The Diagnosis Support Pack (DSP) has therefore been coproduced by families for families following a diagnosis of a neurodiversity, and contains information, resources and signposting in a variety of media (video's, infographics, animations), split into 14 sections - from sleep to medication, and lots more.

The pack has been co-produced with the help of parents, young people, local Parent Carer Forums, CAMHS, Education Psychology and other key partners.

 

 The DSP covers the following topics:

  1. Introduction
  2. Positives of Neuro-diversities
  3. Holistic Approach
  4. What to expect at your appointment
  5. Sleep
  6. Medication
  7. Talking about a diagnosis
  8. Sensory Processing Needs
  9. Mental Heath
  10. Supporting Social Communication Development in Autism
  11. Best Practice Guide – for professionals
  12. Contact Information and Resources
  13. Jargon Buster
  14. Printable resources and links


All pages have been made easy to follow, with links that that guide you through the pack. 

As well as making the pack informative and useful, it was really important to Bedfordshire and Luton Children's Community Health Services that the pack uplifts people and celebrates neurodiversity. They know many families find receiving a diagnosis a challenging time, but empowering messages and having positive role models are so important to help parents/carers and young people on their journey.

The web link to the Diagnosis Support Pack is:  www.cambscommunityservices.nhs.uk/beds-luton-community-paediatrics/diagnosis-support-pack or by scanning on this QR Code: